Privacy Policy for bloodcanceraware.org

Privacy Policy

Last Updated: 8 August 2025

1. Who We Are

This privacy policy explains how we collect, use, and protect the limited personal data processed through the Blood Cancer Awareness website (https://bloodcanceraware.org).

This website was commissioned by and is operated on behalf of ALAN (Acute Leukaemia Advocates Network), which is hosted by the Leukemia Patient Advocates Foundation. The foundation is the data controller for any information processed.

  • Data Controller: Leukemia Patient Advocates Foundation
  • Registration: Chamber of Commerce of the Canton Bern: CH-036.7.052.001-2
  • Address: P.O. Box 453, CH-3000 Bern 7, Switzerland
  • Contact Email: info@acuteleuk.org

2. What Personal Data We Collect

This is an informational website, and we do not ask you to provide information like your name or email address. The only personal data we process is collected automatically:

  • Technical & Usage Data: Your IP address, browser type and version, the pages you visit on our site, the time and date of your visit, and the time spent on those pages. This data is collected through server logs and analytics cookies.

3. How and Why We Use Your Personal Data (Legal Basis)

We only use your personal data when the law allows us to.

  • For our Legitimate Interests: We process Technical and Usage Data to ensure our website is secure and functions correctly, and to analyse visitor statistics to improve our content and user experience.
  • With Your Consent: We use analytics cookies to gather this data only if you provide your consent through our cookie banner.

4. Who We Share Your Data With

We do not sell your personal data. We may share aggregated, anonymous data with:

  • Analytics providers (e.g., Google Analytics) to help us understand website traffic.
  • Social media companies (e.g., Twitter, Facebook) if you use the sharing functions on our site.

5. International Data Transfers

As we are based in Switzerland, your data is processed here. Our service providers (e.g., for analytics) may be based in other countries. We ensure any data transfers outside of Switzerland, the UK, or the European Economic Area (EEA) are protected by appropriate legal safeguards, such as Standard Contractual Clauses (SCCs).

6. Data Security & Retention

We have put in place security measures to protect your data. We only retain technical and usage data for as long as necessary to fulfil our analytical and security purposes, after which it is anonymised or deleted.

7. Your Data Protection Rights

Under data protection law, you have rights including the right to access, rectify, erase, and object to the processing of your personal data. To exercise any of your rights, please contact us at info@acuteleuk.org.

8. How to Complain

If you have concerns, please contact us first. You also have the right to complain to a data protection authority, such as the Swiss FDPIC or the UK’s ICO.