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CLL Advocates Network Effective March 16, 2026 The information provided by Network name (“we,” “our,” or “us”) on this website is for general informational and educational purposes only. By using this website, you agree to the terms outlined in this Disclaimer. 1. No Medical Advice – The content on this website, including text, graphics, articles,…
PACIFICA-Study
This study is testing how well pacritinib works compared to other standard treatments in people with a type of blood cancer called myelofibrosis (MF) who also have very low platelet counts. MF can occur on its own (PMF) or after other MPN (PPV-MF or PET-MF). Who Can Join People with moderate to high-risk MF based on a scoring system called DIPSS.…
Survey on sleep quality in patients with hematological malignancies
This survey is intended for individuals diagnosed with a hematological malignancy and aims to collect information about their experience of the disease and sleep quality. Participation is entirely voluntary. The survey is anonymous and does not involve the collection of personally identifiable data (such as name, surname, address, or contact details). There are no risks…
Highlights from ASH – Infographic gallery
Download your copy and discover the core insights from ASH congress, condensed into a dynamic infographic. Acute lymphoblastic leukemia (ALL) File for download: ALAN Infographic – Advances in treatment for B-cell acute lymphoblastic leukemia File for download: ALAN Infographic – Chemotherapy‑free ponatinib plus blinatumomab regimen for adults with Ph+ B‑ALL Acute Myeloid Leukemia (AML) File for download: ALAN Infographic…
CML Advocates Network Presents New Insights on Patient Preferences in CML Treatment at ASH 2025
On December 7th 2025, at the American Society of Hematology (ASH) Annual Meeting, Jan Geissler presented the CML Advocates Network–led poster titled “Patient Preferences in CML Treatment.” This important study reflects months of collaboration, outreach, and support from our global community of CML patient organisations, who played a key role in promoting the survey and…
FOLC DECEMBER 2025
Latest News Across LC World Lymphoma Awareness Day 2025 – Campaign Highlights The 2025 WLAD campaign reached an impressive 10,238,197 individuals, creating meaningful connections and fostering awareness worldwide. The campaign URL; worldlymphomaawarenessday.org received 15,000 page views. A key improvement this year included the toolkit downloads which involved an increase of 2,138 (a 16% increase from 2024), underscoring stronger engagement with WLAD resources. These…
Kick-Off of a New Latin American Partnership to Strengthen Lymphoma Advocacy and Care
Pictured: Lymphoma Coalition and GELL leaders gathered at ASH 2025 At the recent meeting of the American Society of Hematology (ASH), Lymphoma Coalition held the official kick-off meeting for a new partnership with the Latin American Lymphoproliferative Study Group (GELL). GELL is a respected non-profit academic organisation dedicated to advancing onco-hematology, particularly lymphoproliferative disorders such as lymphomas…
ASH 2025
In December 2025, ALAN’s team actively participated in the American Society of Hematology (ASH) Annual Meeting, the world’s premier event for hematology research and clinical advancements. Our presence at ASH 2025 strengthened ALAN’s role as a global advocate for people living with adult leukemias and ensured that the patient perspective remained central in discussions shaping…
Variances In Patient-Reported Experiences with Shared Decision-Making By Biological Sex in Patients with Diffuse Large B-Cell Lymphoma (DLBCL) – An Analysis from the Lymphoma Coalition 2024 Global Patient Survey on Lymphomas And CLL
TopicsAll ResearchCommunication & Decision-MakingDoctor–Patient CommunicationShared Decision-MakingAccess to CareAgeBarriers to TreatmentCOVIDPsychosocial & Quality of LifePsychosocialSurvivorshipQuality of LifeTreatment & Side EffectsCAR-TClinical TrialsFatigueSide EffectsTreatmentSubtype-SpecificCLLHodgkin LymphomaRelapse/RefractoryHealth Literacy Variances In Patient-Reported Experiences with Shared Decision-MakingDownload Variances in Patient-Reported Experiences with Shared Decision-Making by Biological Sex in Patients with DLBCL – An Analysis from the Lymphoma Coalition 2024 Global Patient Survey…
Evolving Patient-Reported Value of Treatment Attributes in Follicular Lymphoma: Insights from the Lymphoma Coalition 2024 Global Patient Survey on Lymphomas And CLL
TopicsAll ResearchCommunication & Decision-MakingDoctor–Patient CommunicationShared Decision-MakingAccess to CareAgeBarriers to TreatmentCOVIDPsychosocial & Quality of LifePsychosocialSurvivorshipQuality of LifeTreatment & Side EffectsCAR-TClinical TrialsFatigueSide EffectsTreatmentSubtype-SpecificCLLHodgkin LymphomaRelapse/RefractoryHealth Literacy Evolving Patient-Reported Value of Treatment Attributes in Follicular Lymphoma Insights From the Lymphoma Coalition 2024 GPSDownload Evolving Patient-Reported Value of Treatment Attributes in Follicular Lymphoma: Insights From the Lymphoma Coalition 2024 Global…
