Supporter News
Global Acute Leukemia Patient and Carer Survey : NOW OPEN !
We’re excited to share that the Acute Leukemia Global Survey 2026 is now live. The survey aims to build the most comprehensive picture yet of what it’s really like to live with — or care for someone with — acute leukemia. As a valued member and supporter of the ALAN network, your reach into the…
MPN United – Advancing Access: Tools to Strengthen Patient Advocacy and Access Initiatives
Advancing Access: Tools to Strengthen Patient Advocacy and Access Initiatives MPN United Webinar Series – August 25, 2026 This session explores barriers to equitable access to MPN treatments and clinical trials and highlights practical strategies that patient advocates can use to strengthen evidence-based advocacy efforts. Participants will learn about tools and approaches to support treatment…
Proudly welcoming two new members: The CLLAN now counts 60 member organisations from 48 countries!
Please join us in welcoming two new organisations to the CLL Advocates Network: ASPALLC (Chronic Lymphocytic Leukemia Patients Association) from Spain and the Leukemia & Lymphoma Society of Canada (LLSC) from Canada! ASPALLC is a Spanish nonprofit patient organisation established in 2025 and based in Madrid, with a nationwide focus on supporting people affected by CLL. The Association works to…
Have Your Voice Heard: Join the CANERSurvey 2026
We are pleased to share the launch of the CANCERSurvey 2026, a pan-European patient experience survey led by the European Cancer Organisation (ECO) and WeCanAdvocate. This important initiative aims to gather the experiences of 10,000 people affected by cancer across Europe, creating robust, comparable evidence that will help shape future cancer policies, improve healthcare services,…
Proudly welcoming a new member: The CLLAN now counts 58 member organisations from 48 countries!
Please join us in welcoming Bekämpa LMC Ecuador, CLLAN’s first member organisation from Ecuador! Founded in 2019 by patients, Bekämpa LMC Ecuador supports people living with leukaemia and other cancers, as well as their families and caregivers. The Foundation works to protect patients’ rights and improve access to healthcare services, diagnostic tests, medicines and appropriate treatment. …
Webinar recording now available: New EHA CLL Guidelines – Shaped with Patients, Explained for Patients
On 29 July 2026, the CLL Advocates Network hosted the webinar “New EHA CLL Guidelines – Shaped with Patients, Explained for Patients.” Professor Anna Schuh, Professor of Haematology at the University of Oxford and co-author of the guidelines, explained the key recommendations and what they mean in practice for people living with CLL. The presentation covered…
Patient-reported experiences with cancer-related fatigue (CRF) among treated adolescents and young adults (AYA) with Hodgkin Lymphoma (HL)
TopicsAll ResearchCommunication & Decision-MakingDoctor–Patient CommunicationShared Decision-MakingAccess to CareAgeBarriers to TreatmentCOVIDPsychosocial & Quality of LifePsychosocialSurvivorshipQuality of LifeTreatment & Side EffectsCAR-TClinical TrialsFatigueSide EffectsTreatmentSubtype-SpecificCLLHodgkin LymphomaRelapse/RefractoryHealth Literacy SIOP_2026_LC_ePosterDownload Patient-reported experiences with cancer-related fatigue (CRF) among treated adolescents and young adults (AYA) with Hodgkin Lymphoma (HL) Authors: Marjorie Morrison; Shawn Sajkowski; Lorna Warwick; Mavis LuiLymphoma Coalition, Canada Background and aim…
Proudly welcoming a new member: The CLLAN now counts 57 member organisations from 47 countries!
Please join us in welcoming Hong Kong Adult Blood Cancer Group Ltd., CLLAN’s first member organisation from Hong Kong! Founded in 1997 by patients, family members, and medical and nursing staff from the Prince of Wales Hospital, the group supports adults living with blood cancers, including leukaemia, lymphoma and myeloma, as well as their families. The…
EHA2026
This report distils the patient-relevant content of the EHA 2026 sessions into plain language for patient advocates. Each session opens with a short summary of what was presented, followed by a Key Messages for Patient Advocates box highlighting the points most useful for advocacy, patient communication, and engagement with regulators, researchers and industry. Session 1…
Highlights from EHA – Infographic gallery
Download your copy and discover the core insights from EHA26 congress, condensed into a dynamic infographic. Acute lymphoblastic leukemia (ALL) ALAN infographic – CAR T updates in ALLDownload Acute Myeloid Leukemia (AML) ALAN infographic – AZA with reduced VEN in AMLDownload ALAN infographic – Understanding Menin inhibitors in AMLDownload Acute promyelocytic leukemia (APL) ALAN infographic – ATO treatment…
