Supporter News
Good-Practice Guidelines for holding a Face-to-Face events
How do I prepare for an event knowing the high number of immune compromised individuals at the event? What are the best practices for cleanliness? How do we prepare volunteers and support staff? These questions and more are answered by a new International COVID-19 Blood Cancer Coalition (ICBCC) report. Good-Practice Guidelines on Face-to-Face Events for…
Impact on patient advocacy shared with German CLL study group
German CLL study group members at a recent meeting The XVth International Workshop of the German CLL study group took place last week from April 16th to April 18th in Cologne, Germany with attendance of around 300 physicians, scientists, and research staff from around the world. CLL Advocates Network was represented by its vice chair…
We join other cancer organizations putting needs of European patients first
CLL advocacy comes at a variety of levels. Advocates who work one-on-one with patients help patients at the most intimate of levels, providing support, educating and supporting the patient. Advocacy organizations provide education for advocates and others in the CLL community, with a variety of services including training and resources and supports in a variety…
Strategic Planning Essentials for Blood Cancer Patient Advocacy Organisations – On-Demand Course Now Available!
CLL Advocates Network is excited to announce that the first of 3 courses in our educational sustainability programme “Foundation to Impact: Building Strong Blood Cancer Patient Advocacy Organisations” is now available in an on-demand format on the Blood Cancer Patient Advocates Academy platform! Our first course, “Strategic Planning Essentials for Blood Cancer Patient Advocacy Organisations,”…
NEW COURSE: Strategic Planning Essentials for Blood Cancer Patient Advocacy Organisations
Strategic Planning Essentials for Blood Cancer Patient Advocacy Organisations – On-Demand Course Now Open! Dear members and friends, We’re excited to announce that the first of 3 courses in our educational programme “Foundation to Impact: Building Strong Blood Cancer Patient Advocacy Organisations” is now available in an on-demand format on the Blood Cancer Patient Advocates…
Navigating Immune Challenges in CLL
Infection Prevention and Management We recognise that receiving a CLL diagnosis is scary and finding accessible information on CLL can be challenging. The Advocacy Working Group of the CLL IC Task Force, spearheaded by CLLAN, is committed to supporting people living with CLL and immune challenges as well as their family and carers to understand…
Leadership Update at Lymphoma Coaltion
Leadership Transition Lorna Warwick to retire in December 2026 After eight years of leadership, Lymphoma Coalition’s CEO, Lorna Warwick, will be retiring later this year, in December 2026. This milestone will mark a significant milestone for the organisation. Lorna has played a central role in shaping Lymphoma Coalition into a robust, data-driven organisation. The strategy,…
Global MPN Clinical Trials 101: Understanding MPN Research Around the World
Global MPN Clinical Trials 101: Understanding MPN Research Around the World MPN United Webinar Series – March 27, 2026 This session provides an introductory overview of the global MPN clinical trial landscape, including available treatments, the need for international research, and the challenges many countries face in running MPN studies. The webinar also highlights how…
Save the date for the 7th International CLL Horizons conference!
We’re heading to Barcelona 16-18 October. See you there! The CLL Advocates Network Steering Committee is asking you to Save The Date for CLL Horizons 2026 Barcelona, Spain, on 16-18 October 2026.This will be the third year in a row for the Horizons, growing in size and momentum among the advocate community. Following a tremendous event last year in…
FOLC MARCH 2025
Latest News Across LC The 2026 Global Patient Survey on Lymphomas & CLL is Closing Today After ten weeks of incredible momentum, the 2026 Global Patient Survey on Lymphomas & CLL will formally conclude at 9:00 AM BST on April 1. Over 7,900 responses have already been submitted from patients and care partners around the…
