Supporter News
Updated CLLAN Flyer and New QR Resource Card Now Available
We are pleased to share two new materials designed to help members, partners, and stakeholders learn more about CLL Advocates Network (CLLAN) and quickly access key information and educational resources. Updated CLLAN Flyer Our newly updated CLLAN flyer provides a comprehensive overview of who we are, our mission, global membership network, research and publications, patient…
Incidence and Impact of Misdiagnosis in Diffuse Large B-Cell Lymphoma (DLBCL): An Analysis From Lymphoma Coalition’s 2024 Global Patient Survey on Lymphomas & CLL
TopicsAll ResearchCommunication & Decision-MakingDoctor–Patient CommunicationShared Decision-MakingAccess to CareAgeBarriers to TreatmentCOVIDPsychosocial & Quality of LifePsychosocialSurvivorshipQuality of LifeTreatment & Side EffectsCAR-TClinical TrialsFatigueSide EffectsTreatmentSubtype-SpecificCLLHodgkin LymphomaRelapse/RefractoryHealth Literacy eha2026-EHA-5986-abstractDownload Incidence and Impact of Misdiagnosis in Diffuse Large B-Cell Lymphoma (DLBCL): An Analysis From Lymphoma Coalition’s 2024 Global Patient Survey on Lymphomas & CLL Authors: :Lorna Warwick1 Shawn Sajkowski1 Kathryn Perry1…
Introducing the ALAN Drug Development Dashboard
Making acute leukemia clinical trial data accessible, visual, and actionable — for patients, caregivers, advocates, and clinicians. Understanding the treatment landscape is the first step towards effective advocacy. We built the Drug Development Dashboard to put that understanding within reach of everyone touched by acute leukemia. Thousands of clinical trials in acute leukemia are registered…
Symmetrian Beta is live (registration open for patient advocates)
We’d like to share an opportunity that may be relevant for patient advocates in our community who are interested in contributing to research and other health-related initiatives in a structured way. Symmetrian has launched its Beta version. Symmetrian is a digital matchmaking platform designed to connect qualified patient experts with research and health-related initiatives that…
Patient-reported experiences with cancer-related fatigue (CRF) following treatment with car t-cell therapy (CAR-T) in patients with lymphoma or chronic lymphocytic leukemia (CLL)
TopicsAll ResearchCommunication & Decision-MakingDoctor–Patient CommunicationShared Decision-MakingAccess to CareAgeBarriers to TreatmentCOVIDPsychosocial & Quality of LifePsychosocialSurvivorshipQuality of LifeTreatment & Side EffectsCAR-TClinical TrialsFatigueSide EffectsTreatmentSubtype-SpecificCLLHodgkin LymphomaRelapse/RefractoryHealth Literacy PCR183_ISPOR_MAY17_2026Download PATIENT-REPORTED EXPERIENCES WITH CANCER-RELATED FATIGUE (CRF) FOLLOWING TREATMENT WITH CAR T-CELL THERAPY (CAR-T) IN PATIENTS WITH LYMPHOMA OR CHRONIC LYMPHOCYTIC LEUKEMIA (CLL) Authors: Marjorie Morrison, MHA¹; Shawn Sajkowski, BBA¹; Mavis Lui²;…
Good-Practice Guidelines for holding a Face-to-Face events
How do I prepare for an event knowing the high number of immune compromised individuals at the event? What are the best practices for cleanliness? How do we prepare volunteers and support staff? These questions and more are answered by a new International COVID-19 Blood Cancer Coalition (ICBCC) report. Good-Practice Guidelines on Face-to-Face Events for…
Impact on patient advocacy shared with German CLL study group
German CLL study group members at a recent meeting The XVth International Workshop of the German CLL study group took place last week from April 16th to April 18th in Cologne, Germany with attendance of around 300 physicians, scientists, and research staff from around the world. CLL Advocates Network was represented by its vice chair…
We join other cancer organizations putting needs of European patients first
CLL advocacy comes at a variety of levels. Advocates who work one-on-one with patients help patients at the most intimate of levels, providing support, educating and supporting the patient. Advocacy organizations provide education for advocates and others in the CLL community, with a variety of services including training and resources and supports in a variety…
Strategic Planning Essentials for Blood Cancer Patient Advocacy Organisations – On-Demand Course Now Available!
CLL Advocates Network is excited to announce that the first of 3 courses in our educational sustainability programme “Foundation to Impact: Building Strong Blood Cancer Patient Advocacy Organisations” is now available in an on-demand format on the Blood Cancer Patient Advocates Academy platform! Our first course, “Strategic Planning Essentials for Blood Cancer Patient Advocacy Organisations,”…
NEW COURSE: Strategic Planning Essentials for Blood Cancer Patient Advocacy Organisations
Strategic Planning Essentials for Blood Cancer Patient Advocacy Organisations – On-Demand Course Now Open! Dear members and friends, We’re excited to announce that the first of 3 courses in our educational programme “Foundation to Impact: Building Strong Blood Cancer Patient Advocacy Organisations” is now available in an on-demand format on the Blood Cancer Patient Advocates…
