Supporter News
CLL Horizons 2025 – Daily Recap: Day 1, Thursday, 11 September
The opening day of CLL Horizons 2025 in Krakow began with energy and anticipation. After a warm welcome lunch, participants gathered for the opening plenary where the CLL Advocates Network outlined the latest progress and upcoming initiatives. The message was clear: global collaboration is driving real change in chronic lymphocytic leukemia (CLL) advocacy, from new…
Join Us at CLL Horizons 2025 – Register Now for Virtual Access!
Dear Friends of the CLL Advocates Network, As we get closer to the CLL Horizons Conference (11–13 September 2025), we are pleased to announce that virtual participation via Zoom will be available, enabling advocates worldwide to connect, learn, and thrive together. Event Details:📅 Date: 11–13 September 2025💻 Registration link: https://eu01web.zoom.us/meeting/register/MEvfwiznRSKbgVFNHC8S3A🎯 Theme: Understand, Decide, Thrive This year’s program is aligned with World…
Empowering patients with CLL during active monitoring: a call-to-action
Hear from a patient living with Chronic Lymphocytic Leukaemia and learn about their experiences with ‘active monitoring’. Hear hematologist, Dr. Ben Kennedy, on how to support CLL patients on active monitoring Experts discuss the challenges patients with CLL on active monitoring face and the recommendations made in the Call-to-Action report Read the Call-To-Action HERE Globally, incidence…
Latest Research Advances in MDS Treatment
Discover the latest breakthroughs in MDS research and promising new treatment approaches. Exciting Developments in MDS Research The field of MDS research is rapidly advancing, with new therapies and better understanding of the disease driving improved outcomes for patients. Targeted Therapies Researchers are developing drugs that target specific genetic mutations and pathways involved in MDS:…
Building Your MDS Support Network
Learn how to build a comprehensive support network for your MDS journey. The Importance of Support A diagnosis of MDS can be overwhelming, but you’re not alone. Building a strong support network is crucial for emotional well-being and practical assistance. Types of Support Available Medical Support Team Hematologist/Oncologist Primary Care Physician Nurse Coordinator Pharmacist Social…
Understanding Myelodysplastic Syndromes (MDS)
Learn about Myelodysplastic Syndromes, including symptoms, diagnosis, and treatment options. What is MDS? Myelodysplastic Syndromes (MDS) are a group of disorders caused by poorly formed blood cells or faulty blood cells in the bone marrow. MDS affects the production of normal blood cells, leading to anemia, infections, and bleeding problems. Symptoms of MDS Fatigue and…
Current Treatment Options for MDS
Explore the various treatment options available for Myelodysplastic Syndromes patients. Supportive Care The foundation of MDS treatment often begins with supportive care to manage symptoms and maintain quality of life: Blood transfusions to treat anemia Growth factors to stimulate blood cell production Antibiotics to prevent and treat infections Platelet transfusions for bleeding issues Disease-Modifying Treatments Hypomethylating Agents Azacitidine and…
GET READY FOR WORLD CML DAY 2025
World CML Day 2025 is around the corner! Join us in uniting under the theme Equity in Action: Leaving No CML Patient Behind, to ensure every person living with Chronic Myeloid Leukemia (CML) has equal access to diagnosis, treatment, and support. Why this mattersThis year marks a monumental milestone – 25 years since the development of…
Insights from the 2024 CLL Advocacy Survey
We are pleased to share the findings from the 2024 CLL Advocacy Survey, which gathered perspectives from 55 organisations across 42 countries to better understand the unmet needs, challenges, and priorities of the CLL advocacy community. The survey highlights: High engagement with CLLAN resources – 89% of organisations use at least one, most commonly the…
Proudly welcoming a new member: The CLLAN now counts 55 member organisations from 45 countries!
Please join us in welcoming Carita Foundation in Memory of Wiesława Adamiec, CLLAN’s first member from Poland! The Carita Foundation has been operating since 2010, supporting patients in gaining access to modern treatment methods. They provide education about diseases and patient rights, offer support to patients and their families, and advocate for the introduction of new therapies…
