Supporter News
Lymphoma Coalition Announces Three New Board Directors to Drive 2025-2030 Strategic Vision
December 4, 2025 – Lymphoma Coalition (LC), a global network dedicated to improving outcomes for people living with lymphoma, is pleased to announce the appointment of three new members to its Board of Directors: Dr. Clara Chamba (Tanzania), Pete DeNardis (USA) and Meghan Gutierrez (USA). These leaders join the Board at a pivotal time, bringing essential expertise in policy, diagnostics, research, and…
Spotlight on ALAN members
In 2025, with ALAN support, some of our members have been able to start and/or complete projects which benefit acute leukemia patients and their families. We are very grateful that our support could contribute to make these projects happen. Acute Leukemia Patient Advocacy Group Thailand Project Title: Strength in Knowledge, Hope in Action: Empowering Patients…
ALAN Releases Landmark Study on the Burden Faced by Informal Carers of People Living with Acute Leukemia
The Acute Leukemia Advocates Network (ALAN) has published a groundbreaking qualitative study exploring the lived experiences of informal carers across six countries. This first-of-its-kind report sheds light on the profound social, economic, mental, and physical challenges faced by those who provide unpaid care to someone living with acute leukemia. Understanding the Impact of Caring for…
Capturing the Lived Experiences of Informal Care in Acute Leukemia
Acute leukemia imposes a heavy toll on both patients and carers Acute leukemia is a group of aggressive cancers that affect the blood and bone marrow. Acute leukemia progresses rapidly, requires intensive treatment and often leaves patients heavily dependent on family or friends (unpaid, informal carers) for day-to-day support. There is a lack of evidence…
Patient preferences for treatment in relapsed/refractory acute leukemia
When acute leukemia relapses, treatment decisions can be complex. Patients may face trade-offs between survival benefits, side effects and how treatment is delivered. This study asked people with acute leukemia across five countries what matters most to them when making these choices. How did we do it? We surveyed 267 patients in the UK, USA,…
ALAN Global Summit 2025
ALAN hold its first global summit in 2023, which was attended by more than 40 participants from more than 35 countries who attended the event in person. In November 2025, ALAN hosted the Acute Leukemia Global Summit 2025, a three-day international gathering that united patient advocates, healthcare professionals, researchers, and industry partners from more than…
Understanding the preferences of people with acute leukemia for different health outcomes
When we want to understand or measure someone’s “health-related quality-of-life”, we typically ask them to describe the problems they have with different aspects of their health. In this study, we wanted to understand which aspects, or “dimensions”, of health-related quality-of-life are most important to the general public and to persons with acute leukemia. What is…
FOLC SEPTEMBER 2025
Latest News Across LC Thank You for Making #WLAD2025 a Success World Lymphoma Awareness Day (WLAD) 2025 took place on 15 September, and we would like to extend our heartfelt thanks to you for your inspiring contributions. It has been incredibly motivating to see the creative, impactful ways you have embraced this year’s “Honest Talk” theme—whether through advocacy, awareness-raising,…
CML Quality of Life Tracker
Over the past year, a group of advisors have been busy co-creating a standardized and community validated CML quality of life (QoL) tracker. The goal of this tracker is to empower and equip all people with CML to engage in more meaningful conversations with their doctors about daily quality of life challenges for treatment optimization.…
Final Edition of SAFE POLYMED Training Course: Safety in Polypharmacy
Managing multiple medications can be challenging and carries significant risks if not handled safely. To support patients, caregivers, and advocates, the European Union-funded SAFE POLYMED project is launching the 3rd and final edition of its Training Course on Safety in Polypharmacy. This free, online, expert-led training will equip participants with the knowledge and skills to…
