Supporter News
ALAN Global Summit 2025
ALAN hold its first global summit in 2023, which was attended by more than 40 participants from more than 35 countries who attended the event in person. In November 2025, ALAN hosted the Acute Leukemia Global Summit 2025, a three-day international gathering that united patient advocates, healthcare professionals, researchers, and industry partners from more than…
Understanding the preferences of people with acute leukemia for different health outcomes
When we want to understand or measure someone’s “health-related quality-of-life”, we typically ask them to describe the problems they have with different aspects of their health. In this study, we wanted to understand which aspects, or “dimensions”, of health-related quality-of-life are most important to the general public and to persons with acute leukemia. What is…
FOLC SEPTEMBER 2025
Latest News Across LC Thank You for Making #WLAD2025 a Success World Lymphoma Awareness Day (WLAD) 2025 took place on 15 September, and we would like to extend our heartfelt thanks to you for your inspiring contributions. It has been incredibly motivating to see the creative, impactful ways you have embraced this year’s “Honest Talk” theme—whether through advocacy, awareness-raising,…
CML Quality of Life Tracker
Over the past year, a group of advisors have been busy co-creating a standardized and community validated CML quality of life (QoL) tracker. The goal of this tracker is to empower and equip all people with CML to engage in more meaningful conversations with their doctors about daily quality of life challenges for treatment optimization.…
Final Edition of SAFE POLYMED Training Course: Safety in Polypharmacy
Managing multiple medications can be challenging and carries significant risks if not handled safely. To support patients, caregivers, and advocates, the European Union-funded SAFE POLYMED project is launching the 3rd and final edition of its Training Course on Safety in Polypharmacy. This free, online, expert-led training will equip participants with the knowledge and skills to…
Proudly welcoming a new member: The CLLAN now counts 56 member organisations from 46 countries!
Please join us in welcoming Lymfoma a Leukémia Slovensko, CLLAN’s first member from Slovakia! Lymfoma a Leukémia Slovensko (Slovakia) is dedicated to supporting patients not only during treatment but also throughout recovery and beyond. Their approach combines emotional, social, and practical support to ensure that no one has to face their journey alone. They provide peer-to-peer patient support…
EHA 2025 CML AN Conference Report
The 2025 EHA Congress took place in Milan, Italy, from June 12–15. Many representatives from CML AN joined the event and actively participated in the diverse sessions, meetings, and activities on offer. It was an intense and inspiring four days, filled with lots of learning. We are excited to now share a new initiative: a…
CLL Horizons 2025 Concluded Successfully
6th International CLL Horizons Conference, which took place from 11–13 September 2025 at the AC Hotel By Marriott Krakow in Krakow, Poland. Building on the success of previous conferences, the 2025 edition delivered an engaging, impactful experience for CLL advocates worldwide. CLL Horizons 2025 ran from Thursday afternoon to Saturday lunchtime, mirroring the familiar format…
CLL Horizons 2025 – Daily Recap: Day 3, Saturday, 13 September
Day 3 – Saturday, September 13 (Thrive) The final day of CLL Horizons 2025 centered on the theme of Thrive, shifting attention toward resilience, sustainability, and the future of CLL care. The morning began with a satellite symposium that outlined a set of consensus principles for improving care, emphasizing the shared responsibility across healthcare providers,…
CLL Horizons 2025 – Daily Recap: Day 2, Friday, 12 September
The second day of the conference focused on the theme of Decide, highlighting the vital role of information and communication in empowering patients to make confident choices about their care. The morning began with a satellite symposium on closing the communication gap between patients and healthcare professionals during active monitoring. This discussion set the tone…
