Supporter News

Proudly welcoming a new member: The CLLAN now counts 56 member organisations from 46 countries!

Please join us in welcoming Lymfoma a Leukémia Slovensko, CLLAN’s first member from Slovakia! Lymfoma a Leukémia Slovensko (Slovakia) is dedicated to supporting patients not only during treatment but also throughout recovery and beyond. Their approach combines emotional, social, and practical support to ensure that no one has to face their journey alone. They provide peer-to-peer patient support…

CLL Horizons 2025 Concluded Successfully

15th September 2025 Source: https://www.clladvocates.net (visit site)
6th International CLL Horizons Conference, which took place from 11–13 September 2025 at the AC Hotel By Marriott Krakow in Krakow, Poland. Building on the success of previous conferences, the 2025 edition delivered an engaging, impactful experience for CLL advocates worldwide. CLL Horizons 2025 ran from Thursday afternoon to Saturday lunchtime, mirroring the familiar format…

CLL Horizons 2025 – Daily Recap: Day 3, Saturday, 13 September

14th September 2025 Source: https://www.clladvocates.net (visit site)
Day 3 – Saturday, September 13 (Thrive) The final day of CLL Horizons 2025 centered on the theme of Thrive, shifting attention toward resilience, sustainability, and the future of CLL care. The morning began with a satellite symposium that outlined a set of consensus principles for improving care, emphasizing the shared responsibility across healthcare providers,…

CLL Horizons 2025 – Daily Recap: Day 2, Friday, 12 September

13th September 2025 Source: https://www.clladvocates.net (visit site)
The second day of the conference focused on the theme of Decide, highlighting the vital role of information and communication in empowering patients to make confident choices about their care. The morning began with a satellite symposium on closing the communication gap between patients and healthcare professionals during active monitoring. This discussion set the tone…

CLL Horizons 2025 – Daily Recap: Day 1, Thursday, 11 September

12th September 2025 Source: https://www.clladvocates.net (visit site)
The opening day of CLL Horizons 2025 in Krakow began with energy and anticipation. After a warm welcome lunch, participants gathered for the opening plenary where the CLL Advocates Network outlined the latest progress and upcoming initiatives. The message was clear: global collaboration is driving real change in chronic lymphocytic leukemia (CLL) advocacy, from new…

Join Us at CLL Horizons 2025 – Register Now for Virtual Access!

10th September 2025 Source: https://www.clladvocates.net (visit site)
Dear Friends of the CLL Advocates Network, As we get closer to the CLL Horizons Conference (11–13 September 2025), we are pleased to announce that virtual participation via Zoom will be available, enabling advocates worldwide to connect, learn, and thrive together. Event Details:📅 Date: 11–13 September 2025💻 Registration link: https://eu01web.zoom.us/meeting/register/MEvfwiznRSKbgVFNHC8S3A🎯 Theme: Understand, Decide, Thrive This year’s program is aligned with World…

Empowering patients with CLL during active monitoring: a call-to-action

9th September 2025 Source: https://www.clladvocates.net (visit site)
Hear from a patient living with Chronic Lymphocytic Leukaemia and learn about their experiences with ‘active monitoring’. Hear hematologist, Dr. Ben Kennedy, on how to support CLL patients on active monitoring Experts discuss the challenges patients with CLL on active monitoring face and the recommendations made in the Call-to-Action report Read the Call-To-Action HERE Globally, incidence…

Latest Research Advances in MDS Treatment

Discover the latest breakthroughs in MDS research and promising new treatment approaches. Exciting Developments in MDS Research The field of MDS research is rapidly advancing, with new therapies and better understanding of the disease driving improved outcomes for patients. Targeted Therapies Researchers are developing drugs that target specific genetic mutations and pathways involved in MDS:…

Building Your MDS Support Network

Learn how to build a comprehensive support network for your MDS journey. The Importance of Support A diagnosis of MDS can be overwhelming, but you’re not alone. Building a strong support network is crucial for emotional well-being and practical assistance. Types of Support Available Medical Support Team Hematologist/Oncologist Primary Care Physician Nurse Coordinator Pharmacist Social…