Supporter News
Understanding Myelodysplastic Syndromes (MDS)
Learn about Myelodysplastic Syndromes, including symptoms, diagnosis, and treatment options. What is MDS? Myelodysplastic Syndromes (MDS) are a group of disorders caused by poorly formed blood cells or faulty blood cells in the bone marrow. MDS affects the production of normal blood cells, leading to anemia, infections, and bleeding problems. Symptoms of MDS Fatigue and…
Current Treatment Options for MDS
Explore the various treatment options available for Myelodysplastic Syndromes patients. Supportive Care The foundation of MDS treatment often begins with supportive care to manage symptoms and maintain quality of life: Blood transfusions to treat anemia Growth factors to stimulate blood cell production Antibiotics to prevent and treat infections Platelet transfusions for bleeding issues Disease-Modifying Treatments Hypomethylating Agents Azacitidine and…
GET READY FOR WORLD CML DAY 2025
World CML Day 2025 is around the corner! Join us in uniting under the theme Equity in Action: Leaving No CML Patient Behind, to ensure every person living with Chronic Myeloid Leukemia (CML) has equal access to diagnosis, treatment, and support. Why this mattersThis year marks a monumental milestone – 25 years since the development of…
Insights from the 2024 CLL Advocacy Survey
We are pleased to share the findings from the 2024 CLL Advocacy Survey, which gathered perspectives from 55 organisations across 42 countries to better understand the unmet needs, challenges, and priorities of the CLL advocacy community. The survey highlights: High engagement with CLLAN resources – 89% of organisations use at least one, most commonly the…
Proudly welcoming a new member: The CLLAN now counts 55 member organisations from 45 countries!
Please join us in welcoming Carita Foundation in Memory of Wiesława Adamiec, CLLAN’s first member from Poland! The Carita Foundation has been operating since 2010, supporting patients in gaining access to modern treatment methods. They provide education about diseases and patient rights, offer support to patients and their families, and advocate for the introduction of new therapies…
A major new international report, Global CLL Community Insights: How Stakeholders Can Collaborate to Improve Care, has been published
A major new international report, Global CLL Community Insights: How Stakeholders Can Collaborate to Improve Care, has been published, shedding light on the pressing physical, emotional, and informational challenges faced by people living with chronic lymphocytic leukaemia (CLL) and their care partners. Drawing on survey data from 18 countries, the report calls for closer collaboration…
Empowering Shared Decisions: New Recommendations for Assessing “Fitness” in AML
ALAN is proud to be involved in groundbreaking work that provides clear recommendations for assessing fitness in patients with Acute Myeloid Leukemia (AML). This effort aims to improve how treatment decisions are made — not only based on clinical data, but also by integrating what truly matters to patients: their quality of life, preferences, and…
New Free Online Course for Patient Advocates: “Interaction with Newly Diagnosed Patients”
New Free Online Course for Patient Advocates: “Interaction with Newly Diagnosed Patients” The Blood Cancer Patient Advocates Academy has opened registration for its latest free online course: Interaction with Newly Diagnosed Patients. This 5-week online course is specifically designed for CML, CLL, Acute Leukemia, and MPN patient advocates and aims to empower you with the tools, communication techniques, and emotional…
New Free Online Course for Patient Advocates: “Interaction with Newly Diagnosed Patients”
The Blood Cancer Patient Advocates Academy has opened registration for its latest free online course: Interaction with Newly Diagnosed Patients. This 5-week online course is specifically designed for MPN, CML, Acute Leukemia, and CLL patient advocates and aims to empower you with the tools, communication techniques, and emotional insights needed to effectively support newly diagnosed patients and their families. What…
Today is Rare Disease Day!
Today is Rare Disease Day! Did you know that CML can affect children as well? This rare condition is known as Pediatric CML. For those diagnosed, the journey can be challenging. Unlike adult CML, pediatric CML cases require specialized treatment approaches, and research is still evolving to understand the best care strategies. Every deserves access to the right…
