Supporter News
APPIS is back! Register now for APPIS 2024!
The Alliance and Partnerships for Patient Innovation and Solutions (APPIS) is an organization that aims to bring together individuals and groups to create innovative solutions for patients. With its 4th year approaching, APPIS continues to make a positive impact. Rod Padua chair of CML AN and also serves as a strategic advisor for APPIS. With…
Surviving CML makes you ‘grateful for the little things’
Surviving CML makes you ‘grateful for the little things’ Eunice Orekha, Nigeria Diagnosed with CML in 2006 Eunice Orekha was in the middle of moving her family to a new city in Nigeria when something seemed off. Just 30 years old at the time, the government worker attributed the fatigue and weight loss she was…
Join us for “Looking at MPN and ASH 2023“ Webinar!
We are excited to invite you to our webinar “Looking at MPN and ASH 2023“. Our speaker Ronald Hoffman will share the outcomes of 2023 ASH in the context of the history of MPN and how much the disease representation has changed at ASH over the years. This webinar promises to be an insightful session…
Careers
Join the Lymphoma Coalition Team At Lymphoma Coalition, we are dedicated to making a positive impact on the lives of individuals affected by lymphoma, including chronic lymphocytic leukaemia (CLL). When you join our team, you become part of a global network of professionals working together to advance research, support patients, and raise awareness about lymphoma…
New Regional Leader for the Western Europe region has been elected!
We are absolutely thrilled to announce that Nigel Deekes, a dedicated member of the CML UK Facebook Group, has been elected as the temporary Regional Leader for the Western Europe region in our esteemed Patient Organization! Nigel brings to the role a wealth of experience and a proven track record of unwavering dedication to the…
“You have to educate yourself so that you can be your own advocate”
“You have to educate yourself so that you can be your own advocate” Joannie Clements, U.S.A. Diagnosed with CML in 2001 Joannie Clements was diagnosed with chronic myeloid leukemia in 2001, not long after a broken neck forced her husband Jerry into early retirement. Their relationship would be put to the test during a harrowing…
Health Technology Assessment
Health Technology Assessment Special Interest Group In October 2024, Lymphoma Coalition (LC) hosted an afternoon workshop for Members of the Health Technology Assessment Special Interest Group (HTA SIG) in Rome, Italy. The 2024 workshop was attended by HTA SIG Members from 13 countries, namely: Australia, Belgium, Canada, China, Denmark, France, Hong Kong, Ireland, Israel, Japan,…
What is CML SUN?
What is CML SUN? CML SUN is a global patient and physician survey by Novartis that explored the unmet needs of people living with CML. A total of 361 patients and 198 physicians (hematologists and/or oncologists) in 11 countries (Australia, Brazil, Canada, France, Germany, Italy, Japan, South Korea, Spain, the UK, and the US) participated…
“Patients need to be involved and feel like they are involved”
“Patients need to be involved and feel like they are involved” Toni Montserra, Spain Diagnosed with CML in 2015 Toni Montserrat was 49 years old when he experienced an unusual amount of fatigue during a family vacation in 2015. When he returned home, the results of a blood test would begin his CML journey. Now…
