Supporter News
Leukemia Think Tank Feedback: State of Leukemia in South Africa
A Leukemia Think Tank, hosted by the South African cancer advocacy group Campaigning for Cancer (C4C), took place over two days, from 26 to 27 September, at the Premier Hotel in Midrand, Johannesburg. Stakeholders from various sectors attended the multi-disciplinary event to discuss how health professionals and patient groups can collaborate to improve responses to…
CML Advocates Network Meets with Novartis CEO to Review Progress and Strengthen Collaboration
On September 10th 2024, the CML Advocates Network’s Community Advisory Board (CAB) had the unique opportunity to meet with Novartis CEO Vas Narasimhan to discuss the progress made on commitments to the CML community since their previous in-person meeting in 2018. Representing the global CML patient community, advocates Šarūnas Narbutas, Pat Garcia-Gonzalez, Lisa Machado, and…
Day 3: Sunday, 29 September 2024 – Reflections and takeaways from CLL Horizons 2024
As we wrap up CLL Horizons 2024, we reflect on an inspiring and collaborative final day filled with meaningful discussions, insights, and learnings. Sunday, 29th September marked the culmination of three powerful days, with a focus on critical topics in CLL care and advocacy, aiming to empower patients, caregivers, and professionals alike. To relive the highlights…
Day 2: Saturday, 28 September 2024 – Best Practices in Advocacy and Medical Insights
The second day of CLL Horizons 2024 began with a sense of excitement as attendees looked forward to diving into advocacy best practices and gaining medical insights from experts around the world. The day was designed to empower patient advocates and offer participants the tools and knowledge to advance CLL treatment and support efforts globally. To relive the highlights of this…
Day 1: Friday, 27 September 2024 – A Strong Start to CLL Horizons 2024
The first day of CLL Horizons 2024 began at noon with a warm Opening Lunch on the Evolution Terrace, where participants were welcomed by the event team. Over lunch, attendees were introduced to the structure of the conference and received guidance on navigating the sessions ahead. Don’t miss the highlights! View our 2-minute video recap below. Workshops: Building…
Financial Times: Improving AML Patient Care
https://acutemyeloidleukaemia.live.ft.com/ Discussion topics include: What is the experience and unmet needs of AML patients, families and carers, and the challenges they are facing? What is their view of how their diagnosis, treatment, care and support could be improved? What are the cost drivers of AML treatment and care, and how might new drugs, diagnostics, new…
Registration for attending CLL Horizons 2024 in-person is now closed. Final call for virtual registration!
The CLL Advocates Network (CLLAN) Steering Committee is thrilled to announce the return of our highly anticipated in-person event after the pandemic hiatus. Our 5th conference promises a blend of in-person and virtual experiences scheduled for 27th – 29th September in Barcelona, Spain. Final call for virtual registration! – CLICK HERE TO REGISTER Draft Agenda: You can view draft…
Spotlight on ALAN members
In 2024, with ALAN support, some of our members have been able to start and/or complete projects which benefit acute leukemia patients and their families. We are very grateful that our support could contribute to make these projects happen. Aim: provide accurate and comprehensive information to support shared decision-making among those impacted by acute leukemia,…
1 SEPTEMBER IS WORLD CLL DAY – CAMPAIGN TOOLKIT NOW AVAILABLE FOR YOU TO USE!
Dear friends of the CLL Advocates Network Every 1 September, the global CLL community unites to raise awareness about chronic lymphocytic leukemia (CLL) and give those affected by a diagnosis of CLL a much-needed voice. On World CLL Day we come together to improve understanding of the vulnerability of CLL patients and the challenges involved…
EHA 2024 Recap: Optimizing the Relapsed/Refractory CLL Treatment Pathway Webinar
On 9 July at 10:30 am EDT/4:30 pm CET, experts will recap the latest data from EHA 2024, speculate on how it may fit into treatment guidelines, and consider how best to incorporate recent advances into the treatment algorithm. They will discuss the key factors to consider when selecting a therapy for a patient and…