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Join the Lymphoma Coalition Team At Lymphoma Coalition, we are dedicated to making a positive impact on the lives of individuals affected by lymphoma, including chronic lymphocytic leukaemia (CLL). When you join our team, you become part of a global network of professionals working together to advance research, support patients, and raise awareness about lymphoma…
New Regional Leader for the Western Europe region has been elected!
We are absolutely thrilled to announce that Nigel Deekes, a dedicated member of the CML UK Facebook Group, has been elected as the temporary Regional Leader for the Western Europe region in our esteemed Patient Organization! Nigel brings to the role a wealth of experience and a proven track record of unwavering dedication to the…
“You have to educate yourself so that you can be your own advocate”
“You have to educate yourself so that you can be your own advocate” Joannie Clements, U.S.A. Diagnosed with CML in 2001 Joannie Clements was diagnosed with chronic myeloid leukemia in 2001, not long after a broken neck forced her husband Jerry into early retirement. Their relationship would be put to the test during a harrowing…
Health Technology Assessment
Health Technology Assessment Special Interest Group In October 2024, Lymphoma Coalition (LC) hosted an afternoon workshop for Members of the Health Technology Assessment Special Interest Group (HTA SIG) in Rome, Italy. The 2024 workshop was attended by HTA SIG Members from 13 countries, namely: Australia, Belgium, Canada, China, Denmark, France, Hong Kong, Ireland, Israel, Japan,…
What is CML SUN?
What is CML SUN? CML SUN is a global patient and physician survey by Novartis that explored the unmet needs of people living with CML. A total of 361 patients and 198 physicians (hematologists and/or oncologists) in 11 countries (Australia, Brazil, Canada, France, Germany, Italy, Japan, South Korea, Spain, the UK, and the US) participated…
“Patients need to be involved and feel like they are involved”
“Patients need to be involved and feel like they are involved” Toni Montserra, Spain Diagnosed with CML in 2015 Toni Montserrat was 49 years old when he experienced an unusual amount of fatigue during a family vacation in 2015. When he returned home, the results of a blood test would begin his CML journey. Now…
MPN Horizons 2023 Conference videos & presentations now available
We are happy to announce that all videos and presentations of the MPN Horizons 2023 Conference are now available! Go to conference page
ICBCC 2023 Patient Impact Statement
In 2021, Lymphoma Coalition joined the International COVID-19 Blood Cancer Coalition (ICBCC). The ICBCC comprises representatives from the global patient advocacy and clinical community to address the specific impact of COVID-19 on immunocompromised blood cancer patients (both acute and chronic), like those living with Chronic Lymphocytic Leukaemia (CLL) and other Non Hodgkin lymphomas (NHLs). In…
Lymphoma Coalition at EBMT 2023
Lymphoma Coalition is delighted to announce its participation in the 49th Annual European Society for Blood and Marrow Transplantation (EBMT) meeting, taking place this weekend in Paris France. Presenting the poster, “P877: A Cross-Sectional Study Examining Potential Demographic Barriers to Receiving Information on Clinical Trials in Relapsed/Refractory Patients Who Have Received Stem Cell Transplants (SCT).…
