Supporter News

Discover the latest breakthroughs in MDS research and promising new treatment approaches. Exciting Developments in MDS Research The field of MDS research is rapidly advancing, with new therapies and better understanding of the disease driving improved outcomes for patients. Targeted Therapies Researchers are developing drugs that target specific genetic mutations and pathways involved in MDS:…

Learn how to build a comprehensive support network for your MDS journey. The Importance of Support A diagnosis of MDS can be overwhelming, but you’re not alone. Building a strong support network is crucial for emotional well-being and practical assistance. Types of Support Available Medical Support Team Hematologist/Oncologist Primary Care Physician Nurse Coordinator Pharmacist Social…

Learn about Myelodysplastic Syndromes, including symptoms, diagnosis, and treatment options. What is MDS? Myelodysplastic Syndromes (MDS) are a group of disorders caused by poorly formed blood cells or faulty blood cells in the bone marrow. MDS affects the production of normal blood cells, leading to anemia, infections, and bleeding problems. Symptoms of MDS Fatigue and…

Explore the various treatment options available for Myelodysplastic Syndromes patients. Supportive Care The foundation of MDS treatment often begins with supportive care to manage symptoms and maintain quality of life: Blood transfusions to treat anemia Growth factors to stimulate blood cell production Antibiotics to prevent and treat infections Platelet transfusions for bleeding issues Disease-Modifying Treatments Hypomethylating Agents Azacitidine and…

World CML Day 2025 is around the corner! Join us in uniting under the theme Equity in Action: Leaving No CML Patient Behind, to ensure every person living with Chronic Myeloid Leukemia (CML) has equal access to diagnosis, treatment, and support. Why this mattersThis year marks a monumental milestone – 25 years since the development of…

We are pleased to share the findings from the 2024 CLL Advocacy Survey, which gathered perspectives from 55 organisations across 42 countries to better understand the unmet needs, challenges, and priorities of the CLL advocacy community. The survey highlights: High engagement with CLLAN resources – 89% of organisations use at least one, most commonly the…

Please join us in welcoming Carita Foundation in Memory of Wiesława Adamiec, CLLAN’s first member from Poland! The Carita Foundation has been operating since 2010, supporting patients in gaining access to modern treatment methods. They provide education about diseases and patient rights, offer support to patients and their families, and advocate for the introduction of new therapies…

A major new international report, Global CLL Community Insights: How Stakeholders Can Collaborate to Improve Care, has been published, shedding light on the pressing physical, emotional, and informational challenges faced by people living with chronic lymphocytic leukaemia (CLL) and their care partners. Drawing on survey data from 18 countries, the report calls for closer collaboration…

ALAN is proud to be involved in groundbreaking work that provides clear recommendations for assessing fitness in patients with Acute Myeloid Leukemia (AML). This effort aims to improve how treatment decisions are made — not only based on clinical data, but also by integrating what truly matters to patients: their quality of life, preferences, and…

New Free Online Course for Patient Advocates: “Interaction with Newly Diagnosed Patients” The Blood Cancer Patient Advocates Academy has opened registration for its latest free online course: Interaction with Newly Diagnosed Patients. This 5-week online course is specifically designed for CML, CLL, Acute Leukemia, and MPN patient advocates and aims to empower you with the tools, communication techniques, and emotional…