Supporter News
Complementary registration for EHA
Dear members and friends of MPN Advocates Network, The EHA (European Hematology Association) is offering 100 complementary registrations to European Patient Advocates to the EHA Congress 2024 in Madrid, from 13-16 June 2024. Get ready to mark your calendars and seize this incredible opportunity! The registration for the highly anticipated EHA Congress 2024 is now…
SECURE YOUR SPOT! Pre-Register Now for CLL HORIZONS 2024
The CLL Advocates Network (CLLAN) Steering Committee are pleased to announce the 5th International CLL Horizons Conference, a hybrid event scheduled for 27th – 29th September in the stunning city of Barcelona, Spain. Save these dates in your diaries!The CLL Horizons Conference 2024 has been strategically coordinated to overlap with the ERIC International Meeting, New Frontiers in CLL Research, also in…
Registration for “Building Relationships with Healthcare Professionals | Hematologists” course and enrolment is now OPEN.
We have exciting news to share. CLL Advocates Network, CML Advocates Network and Acute Leukemia Advocates Network is launching the Leukemia Patient Advocates Academy – a groundbreaking program designed to empower and educate patient advocates. This is an opportunity for patient advocates to be a part of a repeated course which is aimed at building capacity in both smaller and larger patient…
‘This thing is not going to be the end of my life’
‘This thing is not going to be the end of my life’ Onward Mudindo, Zimbabwe Diagnosed with CML in 2014 Onward Mudindo was just 34 years old when he was diagnosed with CML. Over the next five years, the disease — and the side effects from the drugs used to treat it — forced him…
APPIS is back! Register now for APPIS 2024!
The Alliance and Partnerships for Patient Innovation and Solutions (APPIS) is an organization that aims to bring together individuals and groups to create innovative solutions for patients. With its 4th year approaching, APPIS continues to make a positive impact. Rod Padua chair of CML AN and also serves as a strategic advisor for APPIS. With…
Surviving CML makes you ‘grateful for the little things’
Surviving CML makes you ‘grateful for the little things’ Eunice Orekha, Nigeria Diagnosed with CML in 2006 Eunice Orekha was in the middle of moving her family to a new city in Nigeria when something seemed off. Just 30 years old at the time, the government worker attributed the fatigue and weight loss she was…
Join us for “Looking at MPN and ASH 2023“ Webinar!
We are excited to invite you to our webinar “Looking at MPN and ASH 2023“. Our speaker Ronald Hoffman will share the outcomes of 2023 ASH in the context of the history of MPN and how much the disease representation has changed at ASH over the years. This webinar promises to be an insightful session…
Careers
Join the Lymphoma Coalition Team At Lymphoma Coalition, we are dedicated to making a positive impact on the lives of individuals affected by lymphoma, including chronic lymphocytic leukaemia (CLL). When you join our team, you become part of a global network of professionals working together to advance research, support patients, and raise awareness about lymphoma…
New Regional Leader for the Western Europe region has been elected!
We are absolutely thrilled to announce that Nigel Deekes, a dedicated member of the CML UK Facebook Group, has been elected as the temporary Regional Leader for the Western Europe region in our esteemed Patient Organization! Nigel brings to the role a wealth of experience and a proven track record of unwavering dedication to the…
“You have to educate yourself so that you can be your own advocate”
“You have to educate yourself so that you can be your own advocate” Joannie Clements, U.S.A. Diagnosed with CML in 2001 Joannie Clements was diagnosed with chronic myeloid leukemia in 2001, not long after a broken neck forced her husband Jerry into early retirement. Their relationship would be put to the test during a harrowing…