Supporter News

The Blood Cancer Patient Advocates Academy has opened registration for its latest free online course: Interaction with Newly Diagnosed Patients. This 5-week online course is specifically designed for MPN, CML, Acute Leukemia, and CLL patient advocates and aims to empower you with the tools, communication techniques, and emotional insights needed to effectively support newly diagnosed patients and their families. What…

Today is Rare Disease Day! Did you know that CML can affect children as well? This rare condition is known as Pediatric CML. For those diagnosed, the journey can be challenging. Unlike adult CML, pediatric CML cases require specialized treatment approaches, and research is still evolving to understand the best care strategies. Every deserves access to the right…

The 66th ASH Annual Meeting and Exposition took place from the 7th to the 10th of December, 2024 in San Diego, California. CML Advocates Network was represented by Catherin Moura, Jan Geissler, Giora Sharf and Gerald Clements who attended the conference and participated in several activities and sessions. The conference covered key updates in Chronic Myeloid Leukemia…

This webinar presented highlights from ASH congress that took place in December 2024. Presentation: Unravelling ASH’s key topics: Patient and HCP perspectives Recording: Additional information: Unanswered Qs_Webinar- Unravelling ASH’s key topics- Patient and HCP perspectives January 22, 2025 We thank both speakers Dr Charles Craddock and Charles McGrath for their time and their commitment to…

This webinar presented highlights from ASH congress that took place in December 2024. Presentation: Unravelling ASH’s key topics: Patient and HCP perspectives Recording: Additional information: Unanswered Qs_Webinar- Unravelling ASH’s key topics- Patient and HCP perspectives January 22, 2025 We thank both speakers Dr Charles Craddock and Charles McGrath for their time and their commitment to…

Download your copy and discover the core insights from ASH Congress, condensed into a dynamic infographic. Acute lymphoblastic leukemia (ALL) Chemotherapy-free treatment for older adults with ALL Chemotherapy-free treatment for older adults with ALL Impact of immunotherapy in Philadelphia negative ALL Impact of immunotherapy in Philadelphia negative ALL Obe-cel CAR T-cell therapy in B-cell ALL Obe-cel CAR…

We are pleased to share additional insights from the “2023 Global Leukemia Experience Survey: CLL specific findings, unmet needs and recommendations for action“. The Chronic Lymphocytic Leukaemia Advocates Network (CLLAN) conducted an analysis of the 2023 Global Leukemia Experience Survey data to examine diagnostic pathways, immunity status, and treatment decision experiences of people with CLL.…

UPDATES IN AML The following summaries highlight key findings from research posters presented at the 66th ASH Annual Meeting, showcasing new developments in oral maintenance therapies for acute myeloid leukemia (AML). In AML, relapses are common after remission. These treatments aim to help patients stay in remission longer while offering convenient, at-home options. Oral Combination…

Updates in ALL These research updates were presented at the 66th American Society of Hematology (ASH) Congress. The focus was on new treatments and approaches for acute lymphoblastic leukemia (ALL). ALL can sometimes return after treatment (relapse) or the leukemia can fail to respond to initial treatments (refractory disease), making it harder to achieve long-term…

The MPN Advocates Network (MPN AN) is delighted to share a special vlogcast featuring its Steering Committee members. Hosted by Nona from MPN Voice, this engaging conversation sheds light on the people behind the network, their roles, and their vision for the future of MPN advocacy. We are incredibly grateful to Nona and MPN Voice…